Happy 36th birthday to me!!

I know it's been a while since my last post, but I've been dealing with a lot these past few months. First, let me say I happily celebrated my 36th birthday on yesterday Saturday May 30th. It was sort of a low key celebration. I was happy that our entire family went out for an early lunch at Libby's in Madison, located of of Hwy 20 right behind the McDonalds, and Hardee's.  At first I didn't think I would like it, but the food and the service was great. It is a family oriented restaurant serving some of the best old-fashioned Southern food in the area. I can't say enough about the staff, they were very attentive and made us feel right at home. Some of their famous menu items include catfish fillets, country fried steak, burgers, baked chicken, ribs, etc. some of their sides include mashed potatoes, onion rings, french fries, baked sweet potatoes, and so much more. Check them out for lunch during the week, you won't be disappointed.

     Now back to my latest adventures with lupus and kidney disease. I finally was able to begin using my fistula back in February. Yes, I was a little scared about being stuck in my arm with 2 large needles during every dialysis treatment. I mean really, who likes being stuck with a needle. The initial stick by far was the scariest, and to this day I still get an anxious every time go for my treatment. I was prescribed a cream similar to lidocaine that is suppose to numb the area thus making it less painful. Well....I beg to differ. It helps a little but not a lot. I asked the nurse practitioner about the "cold" spray that some people use instead. This kind of freezes the area, making the stick less painful. It also helps that I have a wonderful dialysis tech with years experience who is great at sticking me. I am still doing the 8 hour dialysis treatment at night 3 nights a week. It's not the best sleeping situation, as you are in a chair that reclines all night. It's definitely not the same as sleeping in your bed. But nocturnal dialysis is a lot less strenuous on your body and your heart. The rate of "pull" of fluid and toxins is a lot slower than regular 4 hour dialysis treatment. It is also the closest thing to having a transplanted kidney as a patient can get. I definitely can tell a difference in the amount of energy I now have, plus my lab results look way better. I have had one bad experience while at dialysis. One night I was stuck by someone other than my regular tech, and damaged my fistula. My machine continue to alarm throughout the night, thus not allowing me to finish my entire treatment. I went to my vascular surgeon, who immediately scheduled me for surgery the next morning to go in and clean out the clot and look to see if the stick may have  caused the damage. After surgery, the surgeon stated that the improper stick contributed greatly to my malfunctioning fistula. I then had to have dialysis that night, needless to say I didn't want to go. Things went better, as I had the RN stick me. I have developed anxiety every since that incident.

     As far as my lupus goes, it has been trying to flair up for the past month or so. It began with the rash on my hands, then the pain in my joints, and the constant fatigue. My rheumy advised me to increase my dose of steroids, something I don't like to do. I am also on the IV drug called Benlysta once a month. This drug had stopped all symptoms of my lupus for quite a while. I'm not sure what caused this recent flare up. It is getting better though, I am happy to report. If you or someone you know has lupus, you may want to mention Benlysta to them.

     Other than that, things are going well. Just tired of all of this rain, I am so ready for Summer. If any of you have any great summer vacation plans, please comment below. Since I am listed as active on the kidney transplant lists at 2 medical centers here in the Southeast, my travel is severely limited. I guess I will have to live vicariously through you all and my Facebook friends. Please feel free to post your vacation pictures anytime. One thing that I am looking at doing in the future is featuring a guest blogger once month on my blog to give their story of the their battle with one or both of the diseases. If  you are interested email me at nlbhones1979@gmail.com. Talk to you soon!

Happy Sunday!!!

Hey family...I'm back. I have been away for while for various reasons, but I'm back!!!! Whew, where do I begin. Well first let me start by telling you whats been going on with me health wise. I am still in the process of waiting on a kidney. Right now, due to my Lupus still being active I can't have the transplant done even if a kidney became available for me. Yeah, that sucks. It is something I am having to come to terms with. My nephrologist (kidney Doc) is baffled as to why my Lupus will not burn out. He said in most cases of patients with lupus, who go into renal failure and need dialysis, their lupus usually burns itself out. Of course, I always have to be "that one that won't act right", LOL. Nothing has gone as it was suppose to with me. I told him he needs to right a book on me and we can share the profits. I have thought about writing a book about my experiences with lupus, kidney disease, high blood pressure, and dialysis. What do you guys and gals think? Would it be informative to you? I think it would be a great resource from a patient's point of view. I notice that there aren't many books about lupus out there. Hmmm..I might look into doing that.
But anyhow...my blood counts or Hematocrit levels continue to be low but stable. I have got to eat foods with more ingredients to help elevate my red blood cells and my albumin levels. In other words More Protein!! That is one problem with being on dialysis, I am not really hungry. Now that it is getting warmer (it was in the 80s today here) outside I don't eat as much. Any suggestions on protein filled foods that taste good?? I am responding well to my monthly lupus treatment; my Benlysta infusion. I don't have any aches and pains anymore, that's great!! With this being Lupus awareness month, I will be sharing some facts about Lupus until May 31st. And if there are any questions you would like to ask me please email me at nlbhones1979@gmail.com. I will try my best to answer them as accurately as possible. If you have any information you'd like me to discuss about my experience with lupus, kidney disease, and dialysis I would be glad to help keep you informed. Remember, this is coming from my own personal journey, and I am not a substitute for a physician's opinion.
I am still working my Mary Kay business. Please check out my own personal Mary Kay website at www.marykay.com/nbhones, for great gifts starting at as little as $10. Wow, good quality makeup for $10, that's unheard of but these colors are great. My goal in this is to make it to Director. It will take some hard work, recruiting and sharing this wonderful career opportunity with other women. Ladies, school is about to be out and I know some people will be looking for a job this summer. Please contact me for more information about this great opportunity. Mary Kay is Hiring!!!
Okay...this is a continuation from my post. This week I had a great day on Monday. People say you can't make any money by "selling makeup", well first I don't "sell makeup". I am a beauty consultant who helps women find their inner and outer beauty via skincare and cosmetics. I am so proud of myself, I sold $199.39 in product in less than 15 minutes. Some people don't make that in a day. I love my Mary Kay because I can work where and when I want to, the flexibility is great, I AM THE BOSS, I help enrich women's lives, I have the chance to win a career car, and go on great trips. Plus, Mary Kay is great at recognizing their consultants and their successes. When was the last time your job recognized you? I want other women to join me in this great opportunity. Email me at nlbhones1979@gmail.com for more information about this great opportunity. Talk to you soon, and have a great week!!!!